Mission

CAMAAY has a vision in which an understanding and responsive society ensures equal participation of persons with epilepsy in all aspects of life.

Our mission is to:

  • Empower persons with epilepsy to lead full and rewarding lives
  • Eliminate discrimination through social education
  • Overcome social and psychological challenges created by epilepsy

Objectives

For individuals living with epilepsy:

  • Access to integrated medical and social care providers through partner orgs
  • Achieve highest possible levels of seizure control through lifestyle management and health support
  • Improved educational and economic outcomes and increased opportunities to participate in community life

For families, support networks, and communities:

  • Access to knowledge about epilepsy management and treatments
  • Social support and opportunities for networking
  • Responsiveness to needs and aspirations of people living with epilepsy
  • Broader understanding of the disease, and affirmation of identified epileptics as valued members of society

Outcomes

  1. Create a comprehensive database of epileptic individuals through identification and needs assessment.
  2. Activate members of the community to increase the number of community advocates and non-epileptics who are working toward change.
  3. Identify four local medical facilities and individual practitioners who are committed to working with epileptic cases, and who can provide ongoing support for case management.
  4. Establish local gardens for wealth and nutrition.
  5. Produce informational pamphlets to help educate on what is epilepsy, how to respond to individuals who are experiencing a seizure, and long-term treatment and management options. Educational pamphlets will be targeted at:
    1. Patients (health and self-care)
    2. Families/communities (information about how to assist)
    3. Stakeholders (medical facilities and schools)
  6. Distribute educational materials in identified areas
  7. Complete educational program/ seminar course in each school in identified areas.
  8. Establish a sponsorship program with international donors

Strategies:

Epilepsy Education, Awareness And Training Program

Educate and train various groups within the community to understand epilepsy, know how to properly assist individuals experiencing seizures, and provide social support and acceptance.

Target groups (teachers, health workers, public administrators and other stakeholders) are reached through grassroots level ‘training of trainers’ activities and presentations in institutions such as schools, churches and community public gatherings. Field workers and community relay agents to act as catalysts to develop home based care, support, and rehabilitation services for persons with epilepsy.

Support Groups Program

The program creates community support groups that are family-centered, and where the direct needs of individuals and families are taken care of by the community. The goal of this program is to bring together community advocates and create regular forums for individuals to express concerns and support others across the community.

Youths And Children Against Epilepsy Program

This program empowers youth and children with epilepsy and their allies to be community advocates. It connects youths and children to one another for inspiration, encouragement and sharing of life experiences and is aimed at youths and children that want to support and champion the cause to bring awareness and education about epilepsy.

I Need A Smile On My Face Program

This is a sponsorship and general outreach program whereby Well-wishers and sponsors provide direct support on an individual basis to people living with epilepsy to cover their educational and social needs.

Our objective is to create profiles for young individuals struggling with epilepsy, and connect these with potential donors who can help address specific challenges youth are facing, ie. tuition for school and school materials, healthcare, and food.

Employment Outreach Program

The program assists individuals with epilepsy with employment referrals and consultations, job placements, and counsels them regarding employment rights. It increases employment prospects by helping individuals in negotiating contracts and providing job placement opportunities, as well as providing help with medication and conflict management where there is need.

The program also provides training to employers on how to enable an employee living and working with epilepsy to be successfully employed.